By Alexandra Plows
Debating Human Genetics relies on ethnographic learn focusing totally on the united kingdom publics who're debating and fascinating with human genetics, and comparable bio and techno-science. Drawing on fresh interviews and knowledge, collated in quite a number public settings, it presents a distinct evaluate of a number of publics as they ‘frame’ the stake of the debates during this rising, advanced and arguable arena.
The publication outlines key websites and purposes of human genetics that experience sparked public curiosity, akin to biobanks, stem cells, genetic screening and genomics. It additionally addresses the ‘scientific contoversies’ that experience made significant impression within the public sphere – the united kingdom police DNA database, gene patenting, ‘saviour siblings’, and human cloning. through grounding the techniques and problems with human genetics within the actual lifestyles narratives and activities of sufferer teams, genetic watchdogs, scientists, coverage makers, and plenty of different public teams, the publication exemplifies how human genetics is a domain the place public wisdom and cost claims converge and collide, and identifies the emergence of ‘hybrid publics’ who're attractive with this hybrid technology.
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Extra info for Debating Human Genetics: Contemporary Issues in Public Policy and Ethics
Example text
Importantly, these generally ‘pro genetics’ groups will also identify risks and concerns, in specific contexts; this is ambivalent territory. They include Genetic Interest Group, the patient group Seriously Ill for Medical Research, now called Patients Voice for Medical Advance, and the Association of Medical Research Charities. Closely connected in this network cluster are a number of 26 Methodology and publics overview ‘pro science’ lobby groups; Progress Educational Trust, the Institute of Ideas, and Sense About Science.
Thus the links between these and other groups can vary from strong alliances in specific contexts – such as over civil liberties issues catalysed by the police DNA database – to more ‘weak ties’ links which are made more informally between groups. Ethnographic trails were traced out to Europe, Canada and America as individuals and groups made network connections, catalysed by specific triggers such as policy shifts. Some key international links include the German feminist network ReproKult, the US-based watchdog Genetics and Society, the Indigenous Peoples Council and the People’s Health Movement.
There is a standard list of UK science institutions who are key genetics/genomics players, including funding bodies, such as the Medical Research Council, and the Biotechnology and Biological 28 Methodology and publics overview Sciences Research Council. Both of these are government funded, and there are also significant charity and private foundations which fund medical and scientific research such as the Wellcome Trust. Bodies such as the Royal Society have a quasi-governance function and often take an advisory role and/or take a public stance on specific issues.